Becoming a Kidney Kid

The support provided by Kidney Kids is available to children and young people aged 0-19 years old who experience kidney disease, kidney related conditions and urinary related issues.

 

We are dedicated to building a strong Kidney Kids community with information, personable support and events that bring people together. We are committed to not only supporting Kidney Kids but also their families, understanding that a diagnosis impacts everyone involved.

What do we provide?

Kidney Kids strives to provide a supportive community where children, young people and their families can thrive with the support of the team and one another. Regional events such as the annual Christmas party, annual camps and regular regional catch-ups provide a space where kids and young people can meet others with similar conditions fostering meaningful and unique bonds. These gatherings also allow the families of those affected by kidney related diseases to meet and support one another making the journey feel less isolating.

 

The Kidney Kids team not only provides support on a community scale but also offers one-on-one support. This includes joining our kids and their families on hospital and renal clinic visits, support with education and regular check-ins. Living with kidney related conditions is not only physically tough but also mentally challenging. Kidney Kids is here to help you when and wherever you need it.

Why should you join?

Unlike other Kidney charities, Kidney Kids offers support nationwide specifically to children and young people, meaning our services are tailored to a younger community. Empowering our community is something we strive for, ensuring we can assist our Kidney Kids and their families as they navigate through the challenges that lie ahead. And when our Kidney Kids become kidney adults, we are here to help with the transition.

 

The support Kidney Kids provides is a community effort. Every single child, teenager, parent, guardian and sibling helps our community grow, allowing us to provide more support to more families nationwide. As our charity expands, our influence on kidney related matters grows, enabling us to enhance the lives of kids, young people and families affected by kidney related conditions.

How do I join?

Register to become a Kidney Kid here!

Kidney Kid Registration Form

Kidney Kid Personal Information

First
Last
Address
Address

Kidney Kid Medical Information

Family Information

Name
Name
First
Last
Secondary Contact - Parent / Caregiver / Guardian (optional)
Name
Name
First
Last

Siblings (19 years and under)

Sibling 1

Name
Name
First
Last

Sibling 2

Name
Name
First
Last

Sibling 3

Name
Name
First
Last

Sibling 4

Name
Name
First
Last

Family History of Kidney Disease

Name
Name
First
Last
Name
Name
First
Last
Name
Name
First
Last

Emergency Contact(s)

Name
Name
First
Last

Media

I consent to the use of my child / children’s and family’s image in support of Kidney Kids NZ
I have read and agree to comply with all the associated information with this form and confirm the information above is correct
Name
Name
First
Last

We look forward to hearing from you.

Consents and Key Information

 

Consent:

 

By signing this form, I acknowledge that I understand and consent to the following:

 

  • Kidney Kids NZ to engage directly and work with my child/children and the family.
  • Compliance and acceptance of the Kidney Kids NZ confidentiality statement.
  • A record of each of our interactions will be kept on our secure data base, which I can request to view at any time.
  • I understand the complaints process and agree to follow this process in the event of serious complaint.
  • Relevant information might be shared with other agencies/workers, but I will be informed before this happens.
  • Please be aware if you or anyone else shares images on our Kidney Kids on social or general media, we reserve the right to use as marketing/promotional material for Kidney Kids NZ as they are in the public domain.

 

Confidentiality Statement:

 

Any information gathered by Kidney Kid staff members is considered private and personal and stays between the family and the Kidney Kids NZ support team. We at Kidney Kids NZ are bound by the Privacy Act 2020 to protect that information and will not share it amongst other agencies, family members or friends, without your permission.

 

The only exceptions to this is are:

 

  • if we at Kidney Kids NZ feel there is a situation where you or someone else is at risk of harm, in which case we are bound to report this to the appropriate authority.
  • If we are legally required to provide this by any competent authority or court of law.

 

Complaints Process:

 

Kidney Kids NZ aim to provide a high level of support to our Kidney Kids, their whānau and everyone who engages, supports and is connected to Kidney Kids NZ. If at any time you feel that there has been a major breach of acceptable standards, we welcome your feedback in writing by contacting our management at [email protected]. Kidney Kids NZ take such breaches seriously and will undertake a full review of this and advise you of any outcomes at the conclusion of the process. In addition, we may contact you to ascertain more information during the process.

 

Key Information

 

Contact Information:

 

If you would like further information about your Kidney Kids NZ and our services, to talk about registering for Kidney Kids or for general advice and guidance on your Kidney Kids journey please phone or email the Kidney Kids Team.

 

  • Phone: 0800 215 437 (direct line)
  • Rachel Barrett (National Family Support Manager) – 021 126 0054
  • Rachel Sherman (North Island) – 021 026 86581
  • Juliet Witheford (South Island) – 021 0914 9732
  • Email: [email protected]

 

Social Media & Website

 

For more information about Kidney Kids NZ please read through our website.

 

Facebook – we have three Facebook pages (Ctrl & click to open these links):

 

  • Kidney Kids NZ is our public page. Click here for our Facebook profile.
  • Kidney Kids NZ Hub, a closed page for families to connect and share information in a safe environment and for Kidney Kids to share information direct with our families.
  • Kidney Kids Events, a closed page where we share events, competitions and opportunities to get involved.

 

Instagram – we have a Kidney Kids NZ Instagram page. Click here for our Instagram profile.

 

Linkedin – we have a Kidney Kids NZ Linkedin page to share information with our key corporate supporters and share our fundraising events. Click here for our Linkedin profile.